We won’t stop until CF stands for Cure Found.
What is Cystic Fibrosis?
A genetic disease caused by a faulty cf gene that effects the chloride channels and creates a thick, sticky mucus that lines the lungs, digestive system, and other organs. This mucus allows germs and bacteria to wreak havoc, as it acts as a breeding ground and makes it a lot harder to “get better quick” after catching a bug. These long-lasting lung infections do permanent damage to the lungs and make it hard to breath.
Its genetic: CF is a genetic disease, it is not contagious, and not curable. YET. Both parents have to carry the CF gene in order for their baby to have CF. It is also progressive, the longer someone lives with CF the worse the disease effects their body.
Unless you have done genetic testing, you may not know you are a carrier of CF. CF is commonly diagnosed from the infant heel prick test which is a blood panel that screens for certain disorders.
Many people with CF are pancreatic insufficient, which means they can’t digest fats and proteins the way they are supposed to. This requires daily medicine and often leads to bloating, gas, constipation, and fatty stools.
Daily medicine and treatments help to prevent infection, helps the organs and body grow and develop, and prolong life.
New medical advancements are leading to a promising future for many people living with CF, but they don’t work for everyone and there still isn’t a cure, so our work is not done. With fundraising efforts we can continue to fight until a cure is found!