Our Family, Passion & Why We Won’t Stop Until CF Stands For Cure Found
Welcome! My name is Courtney, aka the person who creates the designs, Ramsey and Shay’s mom, Charles wife, and generally a very happy go lucky, wears my heart on my sleeve, a little bit crazy, a lot a bit multitasker who gets side-tracked, but most of all a loving mama and crafting nerd. I am so excited to be here, and so excited to make these special gifts for you and your loved ones!
I do think it’s important to share a little more about our family and why we give a portion of our proceeds to a foundation very near and dear to our hearts…
We are blessed with two beautiful, vibrant girls but when our second daughter, Shay, was born in September 2020 we were shocked to find out a few days later that she was born with a genetic, non-curable, life-shortening disease called Cystic Fibrosis (CF). It shook our family to the core, and changed a lot of things for us.
One of those things was our daily life, instead of returning to work as planned we decided that I would stay home to care for Shay, to lessen her germ exposure and care for her extra needs.
We also wanted to learn as much as we could about CF, so we started researching and connecting with others to learn more about the disease and what more our family could do, outside of her treatments and extra attention to germs.
Unfortunately, most research and studies for rare diseases aren’t government funded, they rely on donation based funding and so many go with little to no advancements or improved treatment plans. We found that over the past few years, major advances have taken place for the treatment of cystic fibrosis and it was evident that the Cystic Fibrosis Foundation (CFF) and their incredible efforts have been largely responsible for them. This gave us hope, when only a few decades ago children weren’t living into their teen years from this disease, they are now living into their 30’s, 40’s and older. Without this hope for Shay’s future, all of the hard moments we go through would be so much more challenging. Hearing about the improvements to quality and longevity of life for those living with CF has been our saving grace, and we will help fundraise until a cure has been found.
Then I started brainstorming ways to fundraise for the CFF, to help continue the advancements being made. With a serious love for crafting and DIY projects, and a background in studio arts, I made my daughter and her baby BFF some “best” “friend” teethers.
Best Friend Teether’s for Ellie & Shay. Ellie’s mom also came up with the name Salty Soothers – so shoutout to my own BFF for thinking up our name!
When I posted a picture on social media, I got some some great feedback and some interest! I quickly decided to make more as a fundraiser for the CFF, with a fundraising goal. I met my goal in just a couple weeks and was enjoying creating the designs so much, but it was definitely taking up more time than just a side hobby. After talking it over as a family we decided to give it a go as a small business and to continue fundraising efforts by donating a portion of the proceeds.
So here we are, continuing our efforts to raise money and awareness through this small business because I absolutely love doing it and love getting to contribute to a foundation that is literally giving us hope and changing the future for my daughter and thousands of others.
From the bottom of my heart, thank you for your support! *cries and can’t type anymore because vision is blurry*
What is cystic fibrosis & quick facts, visit here.
To learn more about the Cystic Fibrosis Foundation and all of the incredible work they do, visit here.
To learn more about Shay’s journey with cystic fibrosis, visit here.
To donate to our on-going fundraiser for cystic fibrosis, visit here.
Did You Know?
Most people born with cystic fibrosis have naturally salty skin. Hence our name and first design the Salty Soother!Stay salty!
There are 30,000 people in the US living with cystic fibrosis.This qualifies CF as a rare disease
The CFF is 100% donation funded. They receive no government funding.Let’s make CF stand for cure found.
Follow us on IG @saltysoothers! And please tag us in any posts with your Salty Soother Designs using #saltysoothers. We LOVE seeing our designs out in the wild.